Living Well with Lupus

'Living Well with Lupus' is the forum that stands by and supports ‘loopies’ on their journey. It aims to inspire them to discover their own confidence, assertiveness and proactivity so that they can manage their condition more effectively day-to-day, to improve their quality of life and optimise their health prospects long-term. Nb We are not doctors or medical professionals. Any 'loopies' seeking medical advice or information should consult their doctor.

Showing posts with label Managing the medical. Show all posts

Showing posts with label Managing the medical. Show all posts

Saturday, 6 February 2010

‘Hats Off’ to the Dr Hajela’s of this World!

Finding a doctor ‘packed’ with the right qualities makes a world of difference to Living Well with Lupus ... Last week I went for my routin...

Thursday, 26 November 2009

Little things, big difference

Looking back, working out how to ‘live well with lupus’ has taken yonks, and really it’s an ongoing process: I’m always looking for ways to ...

Thursday, 19 November 2009

Cautious Optimism

Perhaps one of my first pieces of advice to anyone newly diagnosed with lupus is to be highly wary of anything you read on the internet, esp...

Monday, 2 November 2009

Yoga and Lupus: An introduction

Why 'loopies' should be prescribed yoga Anyone reading this blog may well have picked up on my enthusiasm for yoga, so I thought it ...

Friday, 23 October 2009

Beating the Bugs

More hints and tips for avoiding Swine Flu and other ‘nasties’ I wrote about my attempts to avoid infection back in January (‘Getting Bugged...

Tuesday, 20 October 2009

No more tears

Don’t you find that it’s often the little things in life that make the biggest difference? A couple of weeks ago I visited the optician for ...

Monday, 5 October 2009

The boy that cried wolf

Having recovered from a cold I picked up, the lupus has done its usual and put in a bit of an appearance: a new rash on my back, ‘hurty’ pat...

Wednesday, 9 September 2009

Avoiding appointment disappointment

I feel like dancing on the rooftop and shrieking with joy because something so strange and marvellous has happened. I have noticed that rece...

Friday, 17 July 2009

Taking the ‘ow!’ out of mouth ulcers

Mouth ulcers are a common symptom of lupus and one that for something so small can cause a great deal of misery The mouth ulcers I get range...

Sunday, 22 March 2009

Getting ‘over the moon’ and weight gain factor

I’ve always had a healthy appetite but when my steroid doses increase I turn into nothing less than a mean eating machine. I am only 5 foot...

Friday, 20 March 2009

Prednisolone the friend and foe

Many a ‘loopie’ has to take Prednisolone at least at some point and often long-term, to control their symptoms - me included. If you don...

Thursday, 15 January 2009

Getting bugged by bugs

I have been desperately trying to avoid getting an infection this winter but at this time of year when bugs are rife, simply leaving the fro...

Thursday, 4 December 2008

On my Soapbox

Hospital parking charges are adding insult to injury Since the beginning of last week I have had to be in and out of my local hospital mor...

Thursday, 27 November 2008

Managing Medicine Muddle

As I discovered the practical reality of having to take so many medicines each day can be a real pain and can eat up far too much precious...

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About Me

Daisy Seale-Barnes: I am a Londoner and live in Peckham with my husband and soul mate, Tony. I love yoga, cooking, eating, camping, reading and socialising with my lovely friends and am known for my incessant chatter. I am a freelance qualitative researcher working for both the private and public sectors. I also spend a lot of time working on a voluntary basis for an organisation that provides emotional support to those experiencing distress and despair. I was diagnosed with lupus in 2002.

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