Living Well with Lupus

'Living Well with Lupus' is the forum that stands by and supports ‘loopies’ on their journey. It aims to inspire them to discover their own confidence, assertiveness and proactivity so that they can manage their condition more effectively day-to-day, to improve their quality of life and optimise their health prospects long-term. Nb We are not doctors or medical professionals. Any 'loopies' seeking medical advice or information should consult their doctor.

Wednesday, 24 June 2009

Happy Days

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It’s been a while, so I thought it was about time I put ‘finger to keyboard’ (a modern twist on ‘pen to paper’). So, what’s been keeping me?...
1 comment:
Wednesday, 22 April 2009

With a bit of help from my friends

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Relationships of any sort can be difficult at the best of times, but factor in lupus and you open up a minefield. Our research and my own pe...
1 comment:
Wednesday, 25 March 2009

The four 'P' approach

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I have been having a bit of an 'amber' time recently and am trying to work my way through some more health difficulties and medical...
4 comments:
Sunday, 22 March 2009

Getting ‘over the moon’ and weight gain factor

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I’ve always had a healthy appetite but when my steroid doses increase I turn into nothing less than a mean eating machine. I am only 5 foot...
12 comments:
Friday, 20 March 2009

Prednisolone the friend and foe

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Many a ‘loopie’ has to take Prednisolone at least at some point and often long-term, to control their symptoms - me included. If you don...
7 comments:
Monday, 2 March 2009

Stop to Go

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I need to get this down in black and white (or more accurately green and white in this instance), so it’s ‘out there’ for everyone to see an...
4 comments:
Monday, 23 February 2009

Butterfly Walk

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The 10th May is World Lupus Day when organisations from across the world unite to try and increase public awareness. The truth is, if othe...
1 comment:
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About Me

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Daisy Seale-Barnes
I am a Londoner and live in Peckham with my husband and soul mate, Tony. I love yoga, cooking, eating, camping, reading and socialising with my lovely friends and am known for my incessant chatter. I am a freelance qualitative researcher working for both the private and public sectors. I also spend a lot of time working on a voluntary basis for an organisation that provides emotional support to those experiencing distress and despair. I was diagnosed with lupus in 2002.
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