Living Well with Lupus

'Living Well with Lupus' is the forum that stands by and supports ‘loopies’ on their journey. It aims to inspire them to discover their own confidence, assertiveness and proactivity so that they can manage their condition more effectively day-to-day, to improve their quality of life and optimise their health prospects long-term. Nb We are not doctors or medical professionals. Any 'loopies' seeking medical advice or information should consult their doctor.

Friday, 17 July 2009

Taking the ‘ow!’ out of mouth ulcers

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Mouth ulcers are a common symptom of lupus and one that for something so small can cause a great deal of misery The mouth ulcers I get range...
247 comments:
Wednesday, 15 July 2009

Troubled Waters

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Well it was bound to happen, it is sod’s law. After all this talk of keeping on top of things and having had a very good run, the lupus has...
3 comments:
Thursday, 2 July 2009

The Cool Way to Staying Hot

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In the heat it can be hard being a loopy. This year I found a better way of being... As I said before, my efforts in the past to protect mys...
5 comments:
Wednesday, 24 June 2009

Happy Days

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It’s been a while, so I thought it was about time I put ‘finger to keyboard’ (a modern twist on ‘pen to paper’). So, what’s been keeping me?...
1 comment:
Wednesday, 22 April 2009

With a bit of help from my friends

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Relationships of any sort can be difficult at the best of times, but factor in lupus and you open up a minefield. Our research and my own pe...
1 comment:
Wednesday, 25 March 2009

The four 'P' approach

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I have been having a bit of an 'amber' time recently and am trying to work my way through some more health difficulties and medical...
4 comments:
Sunday, 22 March 2009

Getting ‘over the moon’ and weight gain factor

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I’ve always had a healthy appetite but when my steroid doses increase I turn into nothing less than a mean eating machine. I am only 5 foot...
12 comments:
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About Me

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Daisy Seale-Barnes
I am a Londoner and live in Peckham with my husband and soul mate, Tony. I love yoga, cooking, eating, camping, reading and socialising with my lovely friends and am known for my incessant chatter. I am a freelance qualitative researcher working for both the private and public sectors. I also spend a lot of time working on a voluntary basis for an organisation that provides emotional support to those experiencing distress and despair. I was diagnosed with lupus in 2002.
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